Nice meeting, a new couple has joined. M shared a bit of their story.
a) Some discussion re the day program. Some positive reports/some negative. Apparently a number of issues still to work out. 1) when the open house was held the entire facility was presented as for use by the program but is actually used by a number of community groups. Result-games room/gym etc are often booked for other groups and the day program is limited to one room. 2) scheduling issues. It is apparent that VON day program/home care/demential team don't communicate well. Are you approved for one day? two days? 3) high staff turnover leaves clients a bit nervous.
b) how to manage day to day events with your partner at home. A regular calendar that shows what will happen all month seems lots for some to focus on. B has created a white board that just has Today's activities on it - 10am go to store, 2pm meet friend at library, 7pm meeting at Southwood. Just focusing on Today seems easier to handle.
c) discussion re benefits (CPP/tax credit) led to discussion - how long before diagnosis were there events that eventually resulted in where they are today. Many caregivers report 6-8 even 10 years of small issues but not identified. Lots of strain in relationships.
Cold weather approaching has everyone thinking of travelling for meetings. T will investigate multiple skype and whether or not we could use the TV at the church for video.