EODA meeting with the Minister of Health July 23/14
Five reps from EODA met with Minister Fred Horne today and reported a very positive response. The Edmonton Journal has reported. http://www.edmontonjournal.com/news/edmonton/services+Albertans+with+early+onset+Alzheimers/10056948/story.html
Provincial EODA meeting with the Minister of Health
In response to our letter outlining our concerns, Minister Fred Horne has met with representatives of the provincial group on Wed July 23/14. Representatives from Lethbridge, Calgary and Edmonton attended. Many of our group provided their personal stories. The 4 issues discussed:
Home Care: Differences in application from region to region, issues with the needs assessments and who may provide AHS supported care. Some regions in the province excel in the provision of Home Care support. How can we get other jurisdictions to follow the same best practices?
Lack of services/programming: There is a need for full time, age appropriate community-based support. There are successful organizations in most communities (often senior’s centres), that offer extensive programming. If provided with adequate resources, these organizations could keep those with early onset actively involved in their community.
Eg: Full time Recreation Therapists at a senior’s organization could support individuals plus build capacity of family members and volunteers.
3. Long term care: The majority of long term care facilities are not in the position to deal with younger people who have dementia and are still physically very active. Our goal is to keep our partners engaged and to channel their energies rather than medicating them.
4. Diagnoses and Medical Support: Our partners were diagnosed with early onset dementia prior to the age of 65. In fact, the majority in our group were diagnosed in their mid- fifties. As a result, diagnosis can be difficult because most doctors don’t believe it is a possibility. Issues arise because the typical supports for dementia are based on the belief that patients (and their caregivers) are in their senior years, have adult children, are financially stable, and have retired.
Alzheimers Cafe in Lethbridge
The Alzheimers Cafe is held monthly in Lethbridge at the Pemmican Lodge. This is a casual get together, a chance to meet others and have a visit. NO stress, No commitment, nice people!
102 5 ave South
4th Monday of the month - next get together is Monday Aug 25/14
Next meeting of Southwood
The next meeting of Southwood is
Aug 19/14 7pm to 8:30pm at Southwood United Church, 10690 Elbow Drive SW Calgary
This meeting is open to those affected by Early OnSet Dementia/alzheimers (meaning a diagnosis before the age of 65). Caregivers meet in an informal and unfacilitated setting to discuss issues. Partners meet separately in a facilitated group.