EODA Provincial Meeting
Early Onset Dementia Alberta (EODA)
2nd meeting: Oct 25/14
Red Deer, AB
Notes are coming!
EODA meeting with the Minister of Health July 23/14
Five reps from EODA met with Minister Fred Horne today and reported a very positive response. The meeting included:
- Charlene Wing – EOD AB, Calgary
- Mark Johnson – EOD AB, Edmonton
- Lori Auld – EOD AB, Edmonton
- Honourable Fred Horne, MLA – Minister of Health
- Ruby Brown, BSc. N, MBA, ICD.D – Assistant Deputy Minister – Health Services Division
- Honourable Dave Quest, MLA – Associate Minister of Seniors Health
- Patricia Dehaeck – EOD AB, Calgary
- Marty Boogaart – EOD AB, Lethbridge
- Ramo Padovani – Executive Assistant, Office of the Minister of Health (not in the picture)
Our representatives covered the 4 issues of EODA and felt there was a frank but good discussion. Anyone in EODA wanting a copy of the minutes can contact one of the reps from their area.
The Edmonton Journal has reported.
Provincial EODA meeting with the Minister of Health
In response to our letter outlining our concerns, Minister Fred Horne has met with representatives of the provincial group on Wed July 23/14. Representatives from Lethbridge, Calgary and Edmonton attended. Many of our group provided their personal stories. The 4 issues discussed:
1. Home Care: Differences in application from region to region, issues with the needs assessments and who may provide AHS supported care. Some regions in the province excel in the provision of Home Care support. How can we get other jurisdictions to follow the same best practices?
2. Lack of services/programming: There is a need for full time, age appropriate community-based support. There are successful organizations in most communities (often senior’s centres), that offer extensive programming. If provided with adequate resources, these organizations could keep those with early onset actively involved in their community. e.g.: Full time Recreation Therapists at a senior’s organization could support individuals plus build capacity of family members and volunteers.
3. Long term care: The majority of long term care facilities are not in the position to deal with younger people who have dementia and are still physically very active. Our goal is to keep our partners engaged and to channel their energies rather than medicating them.
4. Diagnoses and Medical Support: Our partners were diagnosed with early onset dementia prior to the age of 65. In fact, the majority in our group were diagnosed in their mid- fifties. As a result, diagnosis can be difficult because most doctors don’t believe it is a possibility. Issues arise because the typical supports for dementia are based on the belief that patients (and their caregivers) are in their senior years, have adult children, are financially stable, and have retired.
Alzheimers Cafe in Lethbridge
The Alzheimers Cafe is held monthly in Lethbridge at the Pemmican Lodge. This is a casual get together, a chance to meet others and have a visit. NO stress, No commitment, nice people!
102 5 ave South
4th Monday of the month - next get together is Monday Oct 27/14