Save the Date EODA conference 2016
Save the Dates: EODA conference 2016
Nov 18, 19, 20/16 in Red Deer
Holiday Inn Red Deer, 33 Petrolia Drive.
Stay tuned for more information!
If I Get Dementia by Rachael Wonderlin
If I get dementia, I want my friends and family to embrace my reality. If I think my spouse is still alive, or if I think we’re visiting my parents for dinner, let me believe those things. I’ll be much happier for it.
If I get dementia, I don’t want to be treated like a child. Talk to me like the adult that I am.
If I get dementia, I still want to enjoy the things that I’ve always enjoyed. Help me find a way to exercise, read, and visit with friends.
If I get dementia, ask me to tell you a story from my past.
If I get dementia, and I become agitated, take the time to figure out what is bothering me.
If I get dementia, treat me the way that you would want to be treated.
If I get dementia, make sure that there are plenty of snacks for me in the house. Even now if I don’t eat I get angry, and if I have dementia, I may have trouble explaining what I need.
If I get dementia, don’t talk about me as if I’m not in the room.
If I get dementia, don’t feel guilty if you cannot care for me 24 hours a day, 7 days a week. It’s not your fault, and you’ve done your best. Find someone who can help you, or choose a great new place for me to live.
If I get dementia, and I live in a dementia care community, please visit me often.
If I get dementia, don’t act frustrated if I mix up names, events, or places. Take a deep breath. It’s not my fault.
If I get dementia, make sure I always have my favorite music playing within earshot.
If I get dementia, and I like to pick up items and carry them around, help me return those items to their original places.
If I get dementia, don't exclude me from parties and family gatherings.
If I get dementia, know that I still like receiving hugs or handshakes.
If I get dementia, remember that I am still the person you know and love.
Alz Society EOD Survey
Survey for people with young onset dementia:
Survey for Caregivers:
Survey for Health care providers and staff:
Home Care, Community Care, Long Term Care
On October 31, 2015 the EODA (Early Onset Dementia Alberta) association held an open forum in Red Deer, Alberta to discuss their talking points with the broader community. Over one hundred community members from emergency services, non-profit service providers, family members and clinicians contributed to these findings.
What is working?
- Health Link 811 (with additional resource specific to dementia care) is an example of a supportive community program available via telephone
- Dementia Friends is a grassroots effort to help grow awareness and support in community
- ASANT Café is an online gathering place for people living with dementia and their care partners
- Alzheimer Society of Alberta and Northwest Territories
- Family Community Support Services, although not consistently available throughout the province does offer day programs and learning opportunities
- Alberta Dementia Strategy and Action Plan is coming to completion and will soon be presented to the ministry of health
Alzheimer's Cafe in Lethbridge
The Alzheimer's Cafe is held monthly in Lethbridge at the Pemmican Lodge. This is a casual get together, a chance to meet others and have a visit. NO stress, no commitment, nice people!
102 - 5th Avenue South
4th Monday of the month. The next get together is Monday 27 June 2016.
Next meeting of Southwood
This summer's meeting schedule is:
- Tuesday 19 July 2016 from 7pm to 8:30pm
- Tuesday 16 August 2016 from 7pm to 8:30pm
- Tuesday 6 September 2016 from 7pm to 8:30pm
- Tuesday 20 September 2016 from 7pm to 8:30pm
at Southwood United Church, 10690 Elbow Drive SW Calgary
This meeting is open to those affected by Early OnSet Dementia/Alzheimer's (meaning a diagnosis before the age of 65). Caregivers meet in an informal and unfacilitated setting to discuss issues. Partners meet separately in a facilitated group.